What Is It Like Dating Someone With Cystic Fibrosis?

I really wanted a partner who would encourage me to stay healthy, someone who wouldn’t be afraid of the future. Some relationships did end because of CF, either they wanted biological kids , or they didn’t handle my being in the hospital well. I knew I needed a partner that wasn’t upset easily, someone who wouldn’t worry and had the same positive outlook I had. People with Cystic Fibrosis are at high risk for infections due to the buildup of secretions in their lungs.

Related Gastrointestinal Complications

A person with cystic fibrosis will be supported by a team of healthcare professionals at a specialist cystic fibrosis centre. A care plan will be drawn up that’s tailored to their individual needs. Finding out whether you’re a carrier of the faulty gene can help determine if you’re at risk of having a child with cystic fibrosis. A genetic counsellor will explain the results of the test to you and discuss the implications and options available for future pregnancies. The screening result isn’t 100% accurate, so more tests will be carried out to confirm the diagnosis. You, your partner and any other children you have may also be tested to see if you carry the faulty gene that causes cystic fibrosis.

Remember that the condition affects each person differently. Not everyone will have the same symptoms or experience them the same way. Anxiety can often be a symptom of OCD, creating additional challenges in your relationship.

You might think you understand pain, but these illnesses involve some rare pain types. Our bodies take pain signals and boost them, like cranking up the volume. We’re not «making a big deal» out of it or «too sensitive,» it’s just how our nerves and brain respond to pain signals.

Factors that influence life expectancy

Cystic fibrosis can be a third wheel in a dating relationship. I’m still looking for someone who can love us both. Cystic fibrosis can cause malnourishment because the enzymes needed for digestion can’t reach your small intestine, preventing food from being absorbed. People with CF may need a much higher number of calories daily than do people without the condition. You can manage your condition and minimize complications in several ways.

Because of this, some IVF clinics may not accept the sperm from post-transplant men. Men who want to father children after their lung transplant would need to speak to their doctor about sperm freezing or other options prior to undergoing the transplant. At this point in my life, I am only really dating casually, and I’m not looking for a life partner. I have been in 1 serious relationship before, but since that ended I have not been sure if I ever want a monogamous relationship again.

CF should not be the focus of the relationship, nor should it be a barrier to finding a partner – it is just a part that has to be dealt with as well. Dating is not easy – Being with someone who has CF comes with its own unique challenges. Prednisone rage, traumatizing hospital stays, sterility and infertility, mental health crises, fear of planning for the future – to name a few. The days can be unpredictable and they can take a toll on your relationship. For example, people with better lung function consistently rate their quality of life as being higher, compared with the ratings of people with poorer lung function.

If you are a man with CF, the absence of a vas deferens may mean that you are infertile, but it does not mean you are sterile. Even though your vas deferens is missing, you still are producing sperm, while sterile men do not. In fact, around 90% of men with CF who have a missing vas deferens will still have fully productive testicles. If you choose to proceed, you can conceive naturally if there are no physical barriers impairing fertility. If there is infertility in either partner, assisted reproductive techniques such as in vitro fertilization and intrauterine implantation may be explored. Take a slow, deep breath, filling the lungs to 75% capacity.

In addition, they should avoid close contact with people who have other serious respiratory infections, such as the flu, a cold, pneumonia, or tuberculosis. It is important for people with CF to take precautions to avoid contact with people who are known to have CF, as the risk of cross-infection increases in this setting. This can involve avoiding any social contact as well as wearing a face mask and washing hands regularly when in contact with someone known to have CF. Symptoms only begin to appear when the defective gene is present, so someone who does not carry the gene will not experience symptoms of CF. This results in difficulties with breathing and digestion.

Teach all the members of your family to wash their hands thoroughly before eating, after using the bathroom, when coming home from work or school, and after being around a person who is sick. Hand-washing is the best way to protect against infection. Explore Mayo Clinic studies testing new treatments, interventions and tests as a means to prevent, detect, treat or manage this condition. If your blood oxygen level declines, your doctor may recommend that you breathe pure oxygen to prevent high blood pressure in the lungs .

I had been dependent upon her, and she’d found identity in caring for me. The dependency was suddenly unnecessary, and so our roles in the relationship shifted. There are a lot of videos on youtube where cfs share their experiences with treatments and hospital stays.